Episode 099: Where Did Diabetes Distress Come From?




Diabetes distress affects 40% of adults with type 1 diabetes, but what exactly is it and where did the research come from? Neil explores the research, shares practical insights, and provides tools for managing the mental load of T1D.


What You'll Learn


The definition of diabetes distress - It's not just 'having a bad day' with blood sugars
Research history - From the PAID scale (1990s) to the T1-DDS today
Key statistics - Why 40% of T1Ds experience moderate to high distress
Assessment tools - Introduction to the T1-DDS-7 and 28-question versions
Important distinction - How diabetes distress differs from clinical depression


Key Takeaways



Diabetes distress is real and measurable. Researchers didn't study this for fun - they created tools because the mental load of T1D management is significant.



You're not alone in this. If you've felt overwhelmed by the 24/7 demands of diabetes management, you're experiencing what nearly half of people with type 1 feel.


Take Action


Ready to assess your own diabetes distress? Both the T1-DDS-7 (quick) and 28-question (detailed) assessments are available at Neil's website.


Resources


Helpful resources and newsletter: yourbestt1dyear.com


Sponsor


Blue Circle Health offers free coaching and care that fits real life. Sign up free: bluecirclehealth.org


Connect


Instagram: @thebetes | TikTok: @the.betes | Website: yourbestt1dyear.com


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Episode 156: Low Blood Sugars & Emotional Eating